تدريب Shadowing: Why 80% of sleep disorders go undiagnosed | Lindsay Scola | TEDxSonomaCounty - تعلم التحدث بالإنجليزية مع YouTube
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Rebekah Kelley Reviewer I was one of those overachiever kids.
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Rebekah Kelley Reviewer I was one of those overachiever kids.
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12 things going at once,
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already dreaming of changing the world.
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And I was so excited to go to summer school at Yale when I was 16.
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I didn't say I was cool.
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The classes were tough and thought-provoking,
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But that's when something strange started happening to me.
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I'd be sitting in class,
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completely engaged, when suddenly a fog rolled in.
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My thoughts fuzzed, my senses dulled,
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the world blurred, like someone was slowly turning a dimmer switch on my brain.
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I'd pinch my thigh, tap my foot,
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anything to fight this overwhelming urge to sleep.
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Once I bit my tongue so hard it bled,
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and then the thought would hit me like a hammer.
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If I don't go to sleep right now, I'm going to die.
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So somehow quietly, I'd excuse myself,
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slip into a bathroom stall,
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lean my head against the wall, and fall asleep.
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When I told my family doctor,
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she said, you're busy, and busy people are tired.
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It felt dismissive, but also like some secret initiation into adulthood.
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I had big dreams, a lot to accomplish,
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so I figured I just had to get better at being awake.
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When I started working in professional politics,
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exhaustion was a badge of honor.
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The later you stayed up,
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the more coffee you drank,
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the more worthy you felt.
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Society convinced us that if we were tired,
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we were doing it right.
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In 2008, I joined the Obama Advance team,
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the people responsible for everything from logistics to aesthetics on the campaign.
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But the thing about Advance,
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you're in a new city every four to six days,
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regularly pulling all-nighters on behalf of the future president of the United States.
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The stakes were high, it was fast-paced, everyone was exhausted.
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I was surrounded by the best,
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the brightest, and the busiest,
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but I never saw them sneaking into the bathroom to nap like I did.
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I thought I must be lazy,
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that I lacked the willpower everyone else seemed to have.
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And underneath all that drive,
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I felt utterly alone in my inability to keep up.
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As the years passed,
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I kept bringing up my sleepiness to doctors who kept pushing the same glossy handouts on improving my sleep hygiene.
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My gut knew something else was going on.
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And then came the dreams.
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I'd wake up, frozen in bed,
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convinced something terrifying was in the room.
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I could see it, but I couldn't move or scream.
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One doctor said it was just me manifesting stress from my job.
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One night, I woke to a child whispering,
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can I hold your hand?
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The next day, I saged my entire bedroom,
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like never crossed my mind I might have a neurological disorder.
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at 35 i hit my wall i could fall asleep
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but i couldn't stay asleep i was awake most of the
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night falling back asleep just before my alarm went off most
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days i felt like a lunatic zombie barely holding it together
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i would drop things suddenly in the middle of stressful meetings
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at work at my wits end i begged my general practitioner for help she ordered an at-home sleep test
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which came back negative for sleep apnea
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and i was told you're fine i marched back into her office with a full defense that something else was wrong.
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She stopped me mid-sentence and admitted,
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we're officially beyond both our knowledge of sleep.
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I was referred to a sleep specialist,
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which is a doctor trained to diagnose and treat sleep disorders.
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And two months later, after 19 years of symptoms,
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shame, and self-doubt, I was diagnosed with narcolepsy,
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a chronic neurological condition of the brain sleep-wake cycle.
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And before you say 19 years, that's extreme.
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It's not.
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The average diagnosis period for narcolepsy is 8 to 15 years.
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And that's because in medical schools worldwide,
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doctors receive on average less than three hours of education on sleep total across their entire medical training.
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No wonder no doctor thought my Why sleepiness was an issue or asked any follow-up questions?
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Narcolepsy has five distinct symptoms that on their own seem completely unrelated.
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Excessive sleepiness that can feel like you've been awake for 48 hours,
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even after a full night's rest.
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Nighttime hallucinations, sleep paralysis, disrupted sleep, and sometimes cataplexy.
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A loss of muscle tone with strong emotions.
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Which is why I don't have slides in this talk,
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because I was afraid I would drop the remote.
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I never walked into a doctor's office and listed them all together
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because there was no way for me to know they belong to the same story.
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The same way there was no way for me to know my tired was different.
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But for one in five of us, our tired is different.
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While narcolepsy might be rare,
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it's estimated 20% of the population has a sleep disorder.
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Everything from sleep apnea to chronic insomnia,
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restless leg syndrome, and other conditions that quietly steal rest.
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And only 18% of those people have actually been diagnosed,
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which means as many as 50 million people in the United States
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and hundreds of millions of people worldwide are walking around exhausted,
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untreated, and thinking it's normal to feel this way.
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We've been taught to push through exhaustion instead of asking about it.
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This isn't an epidemic of laziness.
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It's a failure of diagnosis.
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We dismiss people with sleep disorders all the time.
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We think sleep apnea only affects middle-aged men with thick necks and square jaws.
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But it can affect anyone at any age and any size.
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Now, thankfully, we've started to recognize that sleep is vital,
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one of the most important things you can do for your physical or mental health.
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When you get enough sleep,
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your body performs quiet miracles,
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repairing cells, balancing hormones, clearing toxins from your brain.
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Sleep is where creativity is born,
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memories are filed, and the subconscious gets to color outside the lines.
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Sleep is the engine of productivity.
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Now, good sleep hygiene matters,
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but for the one in five of us living with a sleep disorder,
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sleep hygiene alone isn't a cure.
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No perfect bedtime routine, no weighted blanket,
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no lavender spray on your pillow will keep your airway open at night.
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Because when the problem is neurological,
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structural, or biochemical, without medical intervention,
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your body pays the price.
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Aside from brain fog, loss of productivity,
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and the dangers of drowsy driving,
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over time, when sleep disorders go undiagnosed,
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they silently break the body down from the inside out,
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fueling inflammation, accelerating aging, driving insulin resistance,
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and raising the risk of heart attack, stroke, even Alzheimer's.
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This isn't just exhaustion.
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It's a slow erosion of health, focus, and longevity.
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But it's also an identity issue.
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I didn't become a whole person until I was diagnosed with narcolepsy.
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Before that, I was working or sleeping.
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There was nothing in between.
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But with treatment, the world came alive to me.
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Colors got brighter.
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I felt a full range of emotions.
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I started having hobbies.
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I found my voice.
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Before my narcolepsy diagnosis, I didn't think I was creative.
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In the last eight years of treatment,
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I've written two pilot scripts,
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wrote and published a whole book,
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became a keynote speaker, and had articles published in national outlets.
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Before my diagnosis, my world felt extraordinarily limited.
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Now, there's no limit to my capacity.
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So consider this, your activation,
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your permission slip, your reclamation,
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your literal wake-up call to question not just your sleep,
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but how you feel during the day.
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If something is off, ask for help,
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demand answers, see a sleep specialist.
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Not just for your health,
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but for the idea, the project,
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the relationship, the version of you that's waiting to wake up.
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Because I want you to live your biggest,
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most beautiful life, full of color,
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curiosity, and awe, wild and wide awake.
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So I'm asking you, is your tired different?
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أهم 5 عبارات للتواصل اليومي
- لم أحصل على قسط كافٍ من النوم. (I didn't get enough sleep.)
- أحتاج إلى أخذ قيلولة. (I need to take a nap.)
- التعب أصبح شائعاً في حياتنا المهنية. (Fatigue has become common in our professional lives.)
- لا أستطيع التركيز اليوم. (I can't concentrate today.)
- هل لديك نصائح لتحسين نمط النوم؟ (Do you have any tips for improving sleep patterns?)
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