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1
The time passes for us all.
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When we take care of the time that takes place, we realize how much life is precious.
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And in general, when something comes to 6 years old, We realize how much life can suddenly fall.
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And I think it's not necessary to wait for something to live plainly.
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When I chose to live an adventure life, I wanted to develop this feeling of living several lives in one.
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For me, it's the essence of the journey.
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This little boy, it's me, little Dimitri.
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I had about three years.
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Three years have passed.
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Today I have 34 years.
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I'm Dimitri Poffet, I grew up in the North of France.
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I've been five years ago, I made a genetic test and I learned that I was positive to the Huntington's disease.
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A disease neurodegenerative rare and incurable.
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The studies show that I should develop the first symptoms between 35 and 40 years old.
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When I learned to be porter of this gene, I sold all the material that I had.
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I left my work in the bank at Paris, I left my apartment and my country to make my dream, to travel to four corners of the world.
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And it's this rich experience that made me realize what I wanted in my life.
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To live my passion, not only for me, but also for people in need.
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So, two years ago, I bought a bike and started a trip in solitary from Mexico to Patagon.
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A journey of 18.000 km.
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And I called this project Explore for Huntington.
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The idea is to be able to collect and collect funds for the disease,
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but also to meet the whole network of Huntington's disease in Latin America to connect together together.
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Like that, I contribute to something sacred.
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The espoir.
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My advice is the following.
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The disease has no boundaries, and we all need to collaborate.
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Huntington is a neurodegenerative, genetic and hereditary.
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My father was born from this disease, and it's him who has transmitted the gene defective to my sister and me.
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When a parent is a child's child, the probability of the transmitting to his child is 50%.
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The current symptoms include difficulties of concentration, problems of memory, movements involontarily, problems of digestion, depression, and many psychiatric troubles.
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The people who are sick of the disease She usually has symptoms between 35 and 50 years old.
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But there are also cases of Huntington Juvenile.
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My sister started to develop symptoms when she was 13.
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Today, she has 42 years old.
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And she's symptoms are grave.
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She has lost autonomy in everyday life.
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She suffers from important problems psychiatriques.
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She's enfermated in her room since the beginning of the disease.
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And she doesn't see a person, not even a doctor.
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She can even make it aggressive.
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Today, there is no curative treatment.
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And I hope that more people will talk about it, the research will progress.
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And the more it will progress, the more there will be hope for a treatment.
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The disease remains a little bit.
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And it's true that the prevalence is relatively low, with about 5 cases for 100.000 individuals in Europe.
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In Chile, a country of 19,5 million inhabitants, we officially recense 380 sick.
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But these are official numbers, and there are a lot more.
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In most countries, the disease is still known, and it's very difficult to identify all the patients.
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In Latin America, few people have access to genetic tests.
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So, few people can take their precautions to not propagate this gene.
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It's one of the most touched areas of the disease in Huntington's world disease.
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That's why I chose to take my trip here.
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Good afternoon, Maricé.
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How are you?
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Everything is fine?
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I am Dimitri.
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I am French.
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And I am here to meet you.
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We have to move forward and try to deliver the best quality of the life possible.
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It has been hard, but we have been able to go ahead and survive.
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With love, affection, affection.
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Do you want to go to Patagonia?
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With the family.
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Yes?
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Like it's a rare disease, with your husband, with your children, we tend to feel alone and isolated.
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I visit people who are infected by the disease to share their hope.
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Sometimes, I see in them part of my future, some symptoms that I might have too.
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But I focus on the beauty of these meetings, on the phone.
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I want to show you through this project that no one is alone and that there is a international community.
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Give us a hug.
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Give us a hug.
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Give us a hug.
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And how do you say in French a hug?
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A hug.
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A hug.
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A hug.
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A hug.
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We all have to be honest with you.
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We managed to control a lot of things throughout history, but not the time.
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Controlling the time, it's just a fantasy.
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And at the end, we all have to do an adventure.
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Not to control the time that passes, but to change the perception.
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The life is so comfortable that most people don't feel the need to get out of their zone.
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And yet when you do it, I believe you really feel what it is to be able to do.
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And for me, it's like this trip.
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A wonderful way to feel alive.
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It connects you to the beauty of human relations.
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I've been doing literally all the corrida from the south of Colombia to Chile.
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So it's a lot of climbing, it's about 150.000 meters of level.
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And with all the weight I have to carry on the bike, sometimes it's very difficult.
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I met so many incredible people during this adventure.
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I rarely felt alone.
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I've crossed the borders and seen dozens of different cultures.
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And I saw that before belonging to a country or culture, we had to have simple attributes.
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The The
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The I'm not going to go to the world.
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I'm not going to go to the world.
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I'm not going to go to the world.
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In the opposite way, we don't have any experience.
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It's part of us, never.
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To go to Latin America, it's not always easy, I believe.
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At some times I even wanted to leave.
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But I never had to leave my arms.
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And you know why?
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Because in every difficult situation, I thought to all of them touch a symptom.
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And it was them who gave me the strength of my heart.
108
Thank you for blessing me.
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Thank you for coming.
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Thank you for coming.
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I was able to go to the south, I saw a metamorphosis of nature.
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Plus I was moving towards the heart of Patagonia, plus the leaves were going to their own colors.
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The forests passed from the orange to the orange, and from the orange to the orange.
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The end of my journey approached me, and nature was given a spectacle.
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The End
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The End
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The adventure is something powerful.
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because there is no certainty.
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It's a constant reflection on what she is doing.
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In the adventure, you decide what are your own limits.
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Pousser au delà de ta zone de confort, c'est fascinant.
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Et surtout quand tu fais face à la nature.
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Pourquoi on escalade des montagnes ?
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Pourquoi on randonne quand il fait froid ou quand il pleut ?
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Moi je pense que l'aventure c'est un moteur inné que beaucoup ont oublié.
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Because everything is becoming so comfortable, so perfectly controlled.
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But we need the uncertainty of adventure to understand who we are really.
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And when we live in nature, we come back to the essence of life.
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We start to valorize the most simple things, and the simple fact of having water, food, or someone with who we are, becomes a treasure.
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And that's how we understand the value of life.
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And the value of the present.
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The idea is to reach the valley, to reach the glacier, to put our yellows, always with a safe step as possible.
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We're going to be there, in the patio of the Torres del Paine.
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Perfect.
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In traveling and living like that, I want to see the day when the disease is declared I don't regret anything.
136
The adventure becomes a way to feel fully alive.
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It becomes a way, even for an instant, to stop the tic tac of the horloge of my life.
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Life is the most beautiful of the cadeau.
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And today, it's the present.
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The End
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I'm sorry.
142
I'm sorry.
143
I'm sorry.
144
I'm sorry.
145
I'm sorry.
146
I'm sorry.
147
I'm sorry.
148
How do you go?
149
How do you go?
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Until now?
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If the sky is asleep I'm a human,
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I've changed that, that's normal.
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oh oh Where are you?
154
How is your way? Where are you?
155
He gave you us He gave you us
156
He gave you us He gave you us And what you
157
are doing? you

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추천 영상

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이 비디오는 헌팅턴병을 가진 디미트리의 이야기를 담고 있어, 감정이 담긴 발화와 다양한 주제의 표현을 연습할 수 있습니다. 유튜브 영어 공부로 실제 생활 속 영어를 익히고, IELTS 스피킹 준비에도 도움이 되는 자연스러운 발음과 리듬을 연습해보세요. 특히 "삶의 소중함", "도전", "희망" 등의 주제로 말하기 능력을 키울 수 있습니다.

핵심 어휘 및 표현

  • neurodegenerative: 신경 퇴행성의 (예: "Huntington's disease is a neurodegenerative disorder.")
  • incurable: 치료할 수 없는 (예: "It's an incurable disease, but there's hope for research.")
  • solitary: 혼자서의 (예: "He started a solitary bike trip across Latin America.")
  • prevalence: 유병률 (예: "The prevalence of the disease is low in Europe.")
  • autonomy: 자립 (예: "She lost her autonomy due to the symptoms.")

연습 팁: Shadow Speak 하기

shadowspeak 또는 shadow speech 연습을 할 때, 이 비디오는 느린 속도와 진솔한 톤이 특징이어서 초보자도 쉽게 따라할 수 있습니다. 먼저 비디오를 2-3번 듣고 발화의 리듬을 파악한 후, 1문장씩 멈추고 즉시 따라하세요. 특히 "life is precious", "contribute to something sacred"와 같은 감정이 담긴 구절은 발음의 강약과 억양을 주의깊게 살펴보세요. 하루 10분씩 연습하면 IELTS 스피킹에서 자연스러운 발화 능력을 키울 수 있으며, 유튜브 영어 공부의 효과를 극대화할 수 있습니다. 실패를 두려워하지 마세요—반복이 실력을 만듭니다!

이 영상의 문법

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문형영상 속 표현
현재완료 have/has + 과거분사 — 과거의 일이 지금도 관련이 있을 때have passed · I've been · has transmitted
수동태 be + 과거분사 — 누가 하는지보다 무슨 일이 일어나는지에 초점was born · is still known · are infected
관계절 who / which + 절 — 사람이나 사물에 대한 추가 정보people who are

쉐도잉이란? 영어 실력을 빠르게 키우는 과학적 방법

쉐도잉(Shadowing)은 원래 전문 통역사 훈련을 위해 개발된 언어 학습 기법으로, 다언어 학자인 Dr. Alexander Arguelles에 의해 대중화된 방법입니다. 핵심 원리는 간단하지만 매우 강력합니다: 원어민의 영어를 들으면서 1~2초의 짧은 지연으로 즉시 소리 내어 따라 말하는 것——마치 '그림자(shadow)'처럼 화자를 따라가는 것입니다. 문법 공부나 수동적인 청취와 달리, 쉐도잉은 뇌와 입 근육이 동시에 실시간으로 영어를 처리하고 재현하도록 훈련합니다. 연구에 따르면 이 방법은 발음 정확도, 억양, 리듬, 연음, 청취력, 말하기 유창성을 크게 향상시킵니다. IELTS 스피킹 준비와 자연스러운 영어 소통을 원하는 분들에게 특히 효과적입니다.

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